Grayson is incredible!!
The last 2 days he has improved drastically!
A few days ago he was in bad shape. The nurses and doctors told us they would hope to have him home by Thanksgiving. That date seemed so far away I couldn't even imagine him being here that long. After a rough evening on Monday night , we went home to sleep. Wes and I spent the evening in prayer, we just cried out to the Lord for healing for our son. We haven't felt closer to each other and closer to the Lord than that night. We felt the presence of the Lord more than ever. We knew he was holding Grayson and us in His mighty hands and that he would heal Grayson. We have never had any doubt about his healing, we just knew it would be in God's timing, not our own.
When I called in the middle of the night {while pumping, of course} he had made a turn for the better. His stats were all looking great and he was finally comfortable and feeling well. It was a complete turn around within hours. The next morning we felt so encouraged when we saw him. They had dropped down all his oxygen levels and pressures, and he was just a completely new boy!
Yesterday, after dropping all his pressures, he continued to improve. He came off his sedation medicine and became very active. He was wiggling, looking all around and giving me the best google eyes I have ever seen. They cut way back on his pain medicine that they are giving him because his chest tube is still in. The problem is that his chest tube is still very uncomfortable so they had to give him a little more pain meds than they had anticipated, but still about half of what he had been on. Last night we went home with the hope that in the morning, if all his pressures and oxygen continued to wean down through the night, we would possibly take him of his ventilator around 4 in the afternoon.
Today has been a good day! We got here this morning and he was doing incredible. The doctors and nurses have been shocked with his turn around. We know it is nothing short of a miracle because 2 days ago we thought we would be here for 2 more weeks. His little body has been covered in prayers and has healed at a remarkable pace.
He has been awake a lot today, continued to look great on his pressures, and was beginning to look like he was very annoyed with his ventilator. After checking his ABG, they decided he was ready to get off the ventilator because he seemed to be annoyed with it. I was so nervous for this event. Today at 2:30 the ventilator came off and he was so happy! He responded so well and instantly looked like a happy boy. They put a little nasal cannula on his nose for a little extra oxygen just as a precaution and he shouldn't be on it for long.
We are so thrilled with this little boy. The only thing left to take off is his chest tube. It is still in because it is the most difficult to redo if anything happens. It is always the last thing they remove. They plan to clamp it off tonight at midnight and if all looks good by 6 am tomorrow, they will take it out. After that he has to finish his antibiotics which will be done Friday morning {he was only on them to prevent any further issues, he never did have any infections} and he can come home. Tomorrow after they remove the chest tube I will get to hold him and nurse him!! My heart is singing.
This has been the craziest roller coaster of our life. Having a perfect and quick delivery seemed like a little blip in time and feels so long ago. We have learned so much during this time and we know all of this happened for a reason.
Wes has been working in the early mornings at this current rotation, then spends the day with me at the hospital, then we go home each night to put Camden to bed and to sleep. Wes is done with this rotation at the end of the week and he will have all of next week off. Can we just say this was God's timing!! We get an entire week together to adjust to having him home before Wes has to go back to work. And we get him for Thanksgiving. What a little turkey!!
We can't express how much we love the sweet messages and prayers we have received. We know we haven't been able to respond to anyone personally, and we so wish we could. Our life right now is spent at Grayson's bedside or at home with Camden giving him all the love and attention we can. We will be back in touch with the world soon and we can't wait to show off our little miracle.
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